I never thought that at 21 I would be facing the challenges I face everyday. Each day is a mystery with how bad the pain will be and if I will be in a flare and how bad the flare will be. When I was younger I used to be the best batter on a winning softball team. I used to be a scholar bowler and now I can't lift a bowling ball.
How did it start? I was in a car accident on my way home from school my senior year ofhigh school, when I was 17. The person rear-ended me and totaled their car and messed up the rear alignment on our suv. The impact caused a tarlov cyst to become symptomatic and start growing. It started eroding my sacral bone and I have spots that are transparent from where it was eroded so much. I had drs deny and ignor the cyst on the mri despite how large it was (over 4 cm long) and it continued to grow and cause nerve damage. I had surgery on the cyst on september 15th, 2016. I ended up contracting adhesive arachnoiditis from the surgery which has left me bed bound from the pain. I dont want t