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Lyrica, etc.
elm7609/08/2010
Hi, i'm new but happy to be here. I've been struggling with fibromyalgia for about a year now. I'm interested to hear others' experiences with Lyrica, good or bad. Also, general stuff about fibro is good too: what's helped you, what hasn't, dealing with loneliness, etc.
My doctor was against me taking Lyrica
GarnetD09/08/2010
because one of the common side effects is weight gain...not something I need. I made a conscious decision that I would not use narcotics with this disease. Too many firbo sufferers get addicted and the drugs do nothing to fix the problem. The one thing that made the most difference for me was a drastic change in lifestlye. I use a one day at a time approach. No grand or glorious plans that are unrealistic for someone who needs to see how they feel when the get up in the morning.

Lessening stress was a huge help in controlling the flares that are so awful. I had both of my children using hypnosis as a form of natural child birth and I dusted off those skills as they are very close to biofeedback and work if my pain is not too out of control.

I do take Cymbalta and that makes a big difference with the depression that comes with the fibro and it helps to take the edge off. It has worked very well for me but everyone is different. Vioxx helped until it messed with my heart and left me with high blood pressure. I have done water mobility classes that helped to keep me exercising but I currently have no access to that.

Being realistic and giving up my type A workaholic ways has been hard but really make the difference.
i was on that
NeeNeRNeeNeR09/09/2010
for quite some time and it didnt work.
im on gabapentin now but i might ask to be taken off seeing how i dont notice any difference
Getting to the point
StarOne09/07/2010
I wish people would get to the point when they contact me,female Devs included.
I am sure they are curious most of the time.
It would save a lot of time,lol.
°what point do you want them to get to?
Stephen6609/08/2010
radiofrequency?
NeeNeRNeeNeR08/28/2010
has anyone ever had this done?
i had it just this week in the head.
the occipital nerves.

going back to get it in lumbar spine and was wondering if anyone had it done in that spot?

i havent met anyone who has the head one done and yea it hurt like HELL and im hoping hte back ones dont hurt like the head
°I am a Radio Engineer and I never heard of it?
daryl*lynn08/31/2010
ooh
NeeNeRNeeNeR09/01/2010
its not like that at all. its a medical procedure
I'm gonna go eat worms...
Reen08/26/2010
Whats the first part of that lil poem again?OHHH nobody loves me, everybody hates me, I'm gonna go eat worms....now I got it. Thanks for letting me share.
°Make sure they are diet worms!
Stephen6608/27/2010
°i want some too
AdminD4Dcom08/27/2010
YUMMY will you share?
Optimism09/01/2010
When I was a child I used to stuff them and sponges up my nose.Lots of yummys!
The Dr. found all kinds of things up there. WHOA... now that,s a really gross job eh?
Pulling out things that have been up a childs nose for weeks or even months? OMGI am so embarassed. I should have eaten them, at least I would have not had to have cartization leter due to bleeding later on due to them.
Back to ER ...Glad I had no kids. I could not take what my mother did. Poor dear mom. You reminded me when you said worms. I am laughing so hard can't type.
Thanks for a great laugh! KIDS!
°OMG Op, you are too funny, in an insane way
Stephen6609/02/2010
and I was just going to ask Reen for gummy worms!
Smiley09/02/2010


Last Edited by Smiley on 09/02/2010
How to use the advanced search on the site
AdminD4Dcom06/23/2010
How to use the Advanced Search Function

1. Go to search

2.Go to advanced search

3. To edit your saved search preferences,

If you're searching for a particular state or province,

4 change the country listed to another one (canada will do)

5. next go back and change it to united states or country of your choice.

6. next, choose State/ Province of your choice

7 Now to the important part:
scroll down slowly and make sure that you uncheck any factors such as female/male only ... and that only features that you want to search for are checked.

8. press save at the very end of the process,

You now should have completed your advanced search.
Hospital
Reen08/21/2010
Just got home from a laporospic gall bladder sugery It could have been a lot worse.... Does it ever end?????
°Wishing u a speedy recovery from the surgery.
Eva9208/22/2010
°Get well soon. Yes, when life ends!
Stephen6608/22/2010
Oh baby, hopefully this will help w/ pain level...
Smiley08/22/2010
read, relax, think about some new devious plan to pull off on forum, but get better! Dont push it and reinjure anything! Take care and get to feeling better!!! Love ya friend!
((((((Smilie)))))
Reen08/23/2010
Thank you! No matter what you have done, its always rought the first few days after surgery.
Brain damaged
lazybill08/14/2010
Is there anyone Brain damaged
°We have a few member who are, in the Blogs.
Stephen6608/14/2010
Israel21c, New device may help severly paralyzed
AdminD4Dcom08/05/2010
A new sniff-sensing device designed in Israel may help the severely paralyzed to communicate, surf the Net and steer their wheelchairs.


Sniffing is a precise motor skill that is controlled partly by the soft palate, which in turn is controlled by several nerves that connect directly through the braincase.
A stroke patient locked into her body for seven months unable to move or communicate was able to write an email to her family using a new device developed in Israel that allows severely disabled people to communicate and steer a wheelchair by sniffing.

The revolutionary new device identifies changes in air pressure inside the nostrils and translates these into electrical signals which can then be used either to write messages or to move a wheelchair.

"The most stirring tests were those we did with locked-in syndrome patients. These are people with unimpaired cognitive function who are completely paralyzed - 'locked into' their bodies," says Prof. Noam Sobel of the Weizmann Institute, who developed the device. "With the new system, they were able to communicate with family members, and even initiate communication with the outside. Some wrote poignant messages to their loved ones, sharing with them, for the first time in a very long time, their thoughts and feelings."

Ability to sniff is preserved

Sniffing is a precise motor skill that is controlled, in part, by the soft palate - the flexible divider that moves to direct air in or out through the mouth or nose. The soft palate is controlled by several nerves that connect to it directly through the braincase. This close link led Sobel and his scientific team to theorize that the ability to sniff - that is, to control soft palate movement - might be preserved even in the most acute cases of paralysis.

Functional magnetic resonance imaging (fMRI) added support to the idea, showing that a number of brain areas contribute to soft palate control. This imaging revealed a significant overlap between soft palate control and the language areas of the brain, hinting to the scientists that the use of sniffing to communicate might be learned intuitively.

To test their theory, Sobel and his team, Dr. Anton Plotkin, Aharon Weissbrod and research student Lee Sela from the Weizmann Institute's Neurobiology Department, created a device with a sensor that fits on the opening of the nostrils and measures changes in air pressure.

For patients on respirators, the team developed a passive version of the device, which diverts airflow to the patient's nostrils.

Initial tests, carried out with healthy volunteers, showed that the device compared favorably with a mouse or joystick for playing computer games. In the next stage, carried out in collaboration with Prof. Nachum Soroker of Loewenstein Hospital Rehabilitation Center in Ra'anana, quadriplegics and locked-in patients tested the device.

The team found that the method of use is easily mastered, both by healthy volunteers and the disabled. Seventy-five percent of the subjects on respirators were able to control their soft palate movement to operate the device.

Simple to learn, cheap to produce

One patient who had been locked into his body after a traffic accident 18 years ago, wrote that the new device was much easier to use than one based on blinking. Another 10 patients, all quadriplegics, succeeded in operating a computer and writing messages through sniffing.

In addition to communication, the device can function as a steering mechanism for wheelchairs: Two successive sniffs tell it to go forward, two out mean reverse, out and then in turn it left, and in and out turn it right. After 15 minutes of practice, the researchers found that a patient paralyzed from the neck down could navigate a wheelchair through a complex route - sharp turns and all - as well as a non-disabled volunteer.

Sniffs can be in or out, strong or shallow, long or short; and this gives the device's developers the opportunity to create a complex 'language' with multiple signals.

Now Yeda Research and Development Company, the Weizmann's technology transfer arm, is exploring the possibility of commercializing the technology, which is not only simple to learn, but also relatively inexpensive to produce.

In future, Sobel, who has been involved in numerous studies related to the sense of smell, believes that this invention could also be useful in other areas, for instance as a control for a 'third arm' for surgeons and pilots.
amazing what technology can do to help improve...
Eva9208/16/2010
a disabled person's life
Site hiccups being worked on
AdminD4Dcom08/01/2010
Just wanted to let you know that the technical people are aware of the site hiccups in sending and receiving e-mail and time out errors when accessing blogs.

All is working again and we hope that it will not happen again soon.

Thanks for your understanding
just some thoughts
bbryan2007/26/2010
hey everybody.

I was just wondering... do any of you have complete lack of use in your arms? I have muscular dystrophy, and since I was 17 (I'm now 29) I started losing the ability to use my hands. I'm now at the point where I can just barely use my trackball on the computer, and that's all.

This gets really frustrating to me, and it has really made me become somewhat antisocial. I have always been shy, but now I just don't feel like doing anything usually. Once in a while I will, but most of the time I spend on my computer.

I was wondering if anybody else is going through this? If so... is there somehow to make myself feel a bit better, so that I can go out more without feeling so... out of place? I'd really like to meet people and have a somewhat normal life, but I'm kind of holding myself back... and I don't know how to let go of these feelings and thoughts I have about myself... thoughts of me being... well, not the most fun person to be around. I do have a good sense of humor, I am very smart, and the friends I have all love me. It's just trying to meet new people is proving to be a problem.

I hope this makes sense, I feel like I'm kind of babbling. If anybody wants to talk, please feel free. If I'm not available, send me a message.

Thanks,
BuD

PS
I type using Dragon NaturallySpeaking, so if any of this came out wrong, sorry about that :-).
I went thru a Center for Independent Living
Smiley07/26/2010
It might go through another name close to you, but the principle is the same. We had social groups, advocacy groups and had a blast! It might sound weird, but even try a hotline to get info for special information. Like a hotline for suicide or something. It has more uses than the one stated. Good luck and be happy! God Bless!!!
Smiley said it all, for those with disabilities
Stephen6607/27/2010
You do not have to be isolated in your situation Bbryan. There is also software you can get for your PC to help with things your hands cannot do. You may want to look into that. Hard to advise as it depends on what you need for your needed.
not a computer problem
bbryan2007/29/2010
I'm able to use my computer pretty well, it's just real life things that I can't do very well.
Society is not setup for the disabled
Stephen6607/30/2010
The problem is that it can cater to general disabilities, but people forget there are many types, many disabled people, many needs.
°the needs are many, the resources are few
Smiley07/31/2010
°And the idiots are aplenty!
Stephen6607/31/2010
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